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MND Australia
Registrace 24. 01. 2012
MND Australia is the national peak body of state organisations that support those living with and impacted by Motor Neurone Disease (MND). Since 1983, we have been the voice for the MND community. Our national and international networks help increase understanding of the disease and advocate for the needs of those affected. We fund world-class research for better treatments, improved care, and ultimately a cure.
MND Open Forum
For the August 2024 edition of State of Play we invited participants to submit questions, which were answered by our expert panel: Dr Karen Hutchinson, Dr Adam Walker, A/Prof Parvathi Menon and A/Prof Kelly Williams.
zhlédnutí: 188
Video
Introduction to the mndconnect.org.au website
zhlédnutí 175Před 2 měsíci
A short overview of www.mndconnect.org.au, including types of content and resources available to people with motor neurone disease (MND). Also includes content for family and carers as well as for healthcare professionals and service providers.
Why we need more data and what we are doing to get it
zhlédnutí 138Před 2 měsíci
Our May 2024 edition of State of Play will feature Anjali Henders (SALSA-SGC) and A/Prof Paul Talman (neurologist and MiNDAUS) to discuss the importance of MND data collection in Australia.
How do we get new treatments into the clinic? Clinical trials and the approval process in Australia
zhlédnutí 109Před 3 měsíci
Our April 2024 edition of State of Play will feature Associate Professor Rob Henderson from the Royal Brisbane and Women’s Hospital and Lucas Tocchini from Biogen Australia. Rob will discuss how clinical trials operate in Australia in the MND space and Lucas will provide an overview of the drug approval process.
How tech research can help people living with MND
zhlédnutí 104Před 5 měsíci
For the March 2024 edition of State of Play we are joined by Dr Taylor Dick from the University of Queensland, and Dr Ben O'Mara from MND Australia
Exercise and motor neurone disease (MND)
zhlédnutí 1,6KPřed 5 měsíci
Exercise can make a positive difference in the lives of people living with motor neurone disease. Recent research has shown that specific exercises can help people with MND maintain strength, mobility, balance and overall wellbeing, for longer. MND Clinic health professionals and physiotherapists can help people with MND get started with a specially designed exercise program.
Diagnosing motor neurone disease (MND)
zhlédnutí 1,7KPřed 8 měsíci
Every day two Australians are diagnosed with motor neurone disease (MND). Early signs can be mild at first and include stumbling, difficulty holding objects and slurring speech. A GP will usually refer someone to neurologist for a diagnosis, but the process can be long and complex. Usually a neurologist will need to confirm symptom progression and test for other diseases which present with simi...
Big Ideas Session
zhlédnutí 64Před 8 měsíci
A quick fire session to hear from early and mid career researchers, in lay terms, about their hopes and dreams for their MND research now and into the future.
Clinical Care sessions
zhlédnutí 44Před 8 měsíci
This session features 8 presentations from researchers and allied health professionals from across the globe
Dr Rachel Yerbury and Dr Darren Saunders
zhlédnutí 166Před 8 měsíci
Lived Experience insights and a tribute to Professor Justin Yerbury
Professor Rick Bedlack, Duke ALS clinic, USA
zhlédnutí 3,4KPřed 8 měsíci
ALS Clinical Research Update November 2023: Signs of Progress, Reasons for Hope.
Cognitive Changes in MND
zhlédnutí 149Před 9 měsíci
For the November 2023 edition of State of Play we are joined by Dr Emma Devenney from the University of Sydney
Eating and speaking in MND: how are researchers targeting appetite and speech decline?
zhlédnutí 119Před 10 měsíci
September 2023 State of Play featuring Dr Derik Steyn and Dr Brooke-Mai Whelan
Bringing new treatments through the pipeline
zhlédnutí 154Před rokem
The August 2023 edition of State of Play features Professor Brad Turner from the Florey Institute of Neuroscience and Mental Health, and Dr Rita Mejzini, from the Perron Institute. Rita and Brad will discuss the process of bringing new treatments through the pipeline.
Bringing new approaches to developing treatments for MND
zhlédnutí 226Před rokem
This webinar features Dr Margreet Ridder and Professor Trent Woodruff, who are both MNDRA-funded researchers from the University of Queensland.
Genetics in MND - therapies, testing and the future
zhlédnutí 152Před rokem
Genetics in MND - therapies, testing and the future
Can we target muscle to develop treatments for MND?
zhlédnutí 245Před rokem
Can we target muscle to develop treatments for MND?
Identifying and targeting disrupted systems in MND
zhlédnutí 156Před rokem
Identifying and targeting disrupted systems in MND
Changing the Game for People Living with MND
zhlédnutí 229Před rokem
Changing the Game for People Living with MND
Her little finger on her left hand lost movement and spread to the ring finger and up through the arm and weakening the left shoulder. This took about two to three months. The onset of the weakness in her arm meant each day we were reminded it wasn't going away and you have to just do what you can with every hour in every day - we prayed a lot for a cure, then you also pray for acceptance and a cure. It is a lonely existence living with MND I'm afraid to tell you, but something inside you keeps you going ❤️
I am suffering from mnd please help me
How to enrol in this trial, please give me contact details
PLS help
L😊
As long as there are people like Dr. Bedlack, there is HOPE for those of us with ALS. I am grateful.
my wife had ALS
I saw your MND Australia channel, And your channel content is very good. But video views are not good. Your channel has some issues due to which your videos are not getting good views. The main problem is SEO.
All thanks to DR ALAHO OLU on CZcams Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more…
All thanks to DR ALAHO OLU on CZcams Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.
What are the supplements that people with refersal are using?
PS: Covid vaccine connection???
My heart already always went out to ALS sufferers, & then my brother aged 80 got late onset MND - ALS Bulbar. The anguish of watching him rapidly decline, a shell of himself, swallow & speech impairment, etc. a truly horrific scenario. What puzzles me is surely such late onset is rare? It’s the most vicious & cruel disease out there and as a family we are stunned & heartbroken for our dear family member. No treatment of any significance, terminal. WHAT ‘S BIG PHARMA DOING? Not much in terms of trials. Not a great money spinner for them. Shame on you.
Yall made me choke on my breakfast when I saw “POOP” as your first wordle choice lol
The cruelest disease out there. It’s when you hear there’s no cure or treatment that your heart sinks. Torture is the only word that comes to mind.
Pls👍🏽help
root cause is herpes virus
Thank you Dr. Bedlack and to your whole team for your work!! It does indeed bring hope and courage being part of the pALS community with all the information and support and opportunities to contribute. Your leadership is precious.
Spg 302 coming date
Check stem cell therapy
I feel like the breakthrough in this disease is very close. Praise God. We must keep praying for these scientists, doctors!!!
I HAVE ALS!
I have had bulbar ALS for 2 years and 9 months. Three minutes into video telling what you need, I received none. All iI got were lies. Virginia
contact me for your studies. i have ALS
My boss ia also suffering from MND since almost two years bt it just one week we discovered it's mnd,,is there anything update
How to recover..?
Can u help pls..?
Fantástico 🎉
I feel that I am a very good candidate for these programs mentioned. What is the process? Thank you kindly for more information. Mrs. Richardson
Wow so empowering for so many of us battling with mnd, thank you xo
Very interesting and understood you very well sister dr Margreet Ridder…
Are there any forums where i can talk to other mnd sufferer's?
I know this is 8 months after you posting, but there is a MND support group on facebook i’m in, includes people affected with and by this cruel disease
very helful video
Our governments can waste billions of dollars on weapons and nukes and space projects but guess what they don’t care about such deadly diseases like this.
Unbelievably good cause and well played. But when will they stop autotuning beautiful voices like Tim's? Imperfection is beauty.
I lost a very very special person to MND in 2007. I miss them beyond words. After some nurses came and spoke with me & assured me not to worry as it was not hereditary. I now think how could they have made such an assumption. Anyway, it is what it is. I miss you more than all the oceans combined in space and time Es. I'm attempting to do a coffee, cake & natter morning soon to raise funds for MNDA UK.
Just found out one my old school mates just passed away from this cruel illness he was a extreme athlete too so so cruel
My father suffering from MND disease since 7 months . any updates and treatment about MND?
My father was suffering from MND. Plz give ur connect details I want to connect u
@@bhupalprajapati7886 my uncle also
nice sharing
Thank you so much xxxxx
Plz help me sir my country Bangladesh and me MND present plz muja bachya
Sir plz help me MND treatment Feast medicine
THANKS IN ADVANCE
Plz fast madichin MND
I was once an ALS patient, but now I have finally got rid of it with the help of DR ALAHO OLU on CZcams herbal medicine you can also get yourself cured with the help of this same man, his herbal medicine works perfectly, well thanks so much…
Hi I m Indian many people suffring from mnd my sis also pls do something in that of people.there is no cure no solution all patients are very hopeless situation.pls do something
Hii my dad also mnd patents any treatment
In India MND patient are increasing but no cure of this diagnose I would to say please right medicine available for this My mom also diagnosed this problem so I know how that situation..
I lost my wife in 2015 to MND. She was diagnosed in June 2014. Keep up the fight to find a cure.
I’m very sorry you lost your beautiful wife to this horrific disease 😢❤️
I am so sorry 😢 I bet she would be super proud of you. My friend has just been diagnosed and he's so scared. I hope this isn't insensitive to ask but Can I ask how she was when she was diagnosed, ie. What symptoms she already had? I am trying to work out quite how far my friend might be along and how much time he might have left with us. Sending so much love to you and your family ❤
Why does he need to give that woke speech at the beginning about aborigine land ?? Is this a disclaimer they have to say all the time in Australia now ??? Sheesh.
Medicine please Doctor
Madcion
Heard for the first time today - this morning. I sobbed on the way to work and I’ve listened to it multiple times and cried each and every time. When I’m paid after this week everything not budgeted I’ll donate for this amazing song. 2 year late to the party but it’s amazing and clever and illustrative. Shut up and take my money. Paid as promised - it’s not much but it’s all I can spare.
Si humko bhi problem hai MND finger weak ho gaya hai 🙏