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A Race Against Blindness - Nonprofit Organization
Registrace 1. 06. 2023
Our 10 year old son, Luke, is going blind due to a rare condition. We founded our nonprofit to support sight-saving research for children with his condition and to support the rare disease community. As we grow as a nonprofit, we aim to fight for all inherited retinal diseases and advocate improving access to new research approval pathways.
Win a van: araceagainstblindness.org/adventure-van-giveaway-2024/
Website: www.araceagainstblindness.org/
Instagram: a.race.against.blindness
Facebook: a.race.against.blindness
Win a van: araceagainstblindness.org/adventure-van-giveaway-2024/
Website: www.araceagainstblindness.org/
Instagram: a.race.against.blindness
Facebook: a.race.against.blindness
Tour the ultimate overland rig with the man who made it ( PS - you can win it!).
The trail series from Backroads Overland Co / Expedition Trailers is the ultimate overland rig. Hayden has truly crafted a work of art, made right here in the USA. Don't be caught off guard by it's compact size - this truly has it all - and we believe it's the first right in a new category - the full-time living capable overland rig. Here's why:
-It has a full outdoor kitchen with rugged refridgerator freezer combo.
-Sink with hot water.
-Outdoor heated shower.
-40 gallon heated fresh water tank.
-4-season camping with 2" insulated foam walls.
-400 AH lithium battery controlled by the RedArc TVMS.
-400 watt solar.
-4" galvanized steel free capable of withstanding rugged overlanding.
-Off road tires and off road suspension.
-Excellent use of storage and space.
-Tons of thought put into the day to day use features and convenience.
-AND MUCH MORE.
This trailer you see here is a 1 of 1 build made for our nonprofit, A Race Against Blindness. There is not another one on the road like it. You could WIN this rig if you get entered by August 18th, 2024. Head over to our website to get your entries with a tax-deductible donation.
araceagainstblindness.org/products/tundra-trailer-giveaway-2024
Oh yeah. We almost forget. We're including a custom overland Toyota Tundra TRD pro with it...
Why are we doing this? Our son is going blind due to RP/BBS1 which is a rare genetic condition. We are fundraising to save his eyesight and thousands of kids like him. Your entry will directly support a clinical trial.
-It has a full outdoor kitchen with rugged refridgerator freezer combo.
-Sink with hot water.
-Outdoor heated shower.
-40 gallon heated fresh water tank.
-4-season camping with 2" insulated foam walls.
-400 AH lithium battery controlled by the RedArc TVMS.
-400 watt solar.
-4" galvanized steel free capable of withstanding rugged overlanding.
-Off road tires and off road suspension.
-Excellent use of storage and space.
-Tons of thought put into the day to day use features and convenience.
-AND MUCH MORE.
This trailer you see here is a 1 of 1 build made for our nonprofit, A Race Against Blindness. There is not another one on the road like it. You could WIN this rig if you get entered by August 18th, 2024. Head over to our website to get your entries with a tax-deductible donation.
araceagainstblindness.org/products/tundra-trailer-giveaway-2024
Oh yeah. We almost forget. We're including a custom overland Toyota Tundra TRD pro with it...
Why are we doing this? Our son is going blind due to RP/BBS1 which is a rare genetic condition. We are fundraising to save his eyesight and thousands of kids like him. Your entry will directly support a clinical trial.
zhlédnutí: 483
Video
Alex and Jonathan won a Storyteller Overland BEAST Mode!
zhlédnutí 372Před 21 dnem
Our first fundraiser of 2024 was a Storyteller Overland Adventure Van. This came on the heels of our 2023 inaugural fundraiser of a custom 27North adventure van. The fundraiser was a hit and a huge success in helping us raise funds to advance a clinical trial to treat the rare cause of childhood blindness our son has. Check out the experience for our winners as they flew out from Nashville to A...
Come take a tour of Rossmönster Vans with one of the founders!
zhlédnutí 103Před 21 dnem
Come take a tour of Rossmönster Vans with one of the founders!
The complete truck and trailer tour that you CAN WIN!
zhlédnutí 106Před 21 dnem
The complete truck and trailer tour that you CAN WIN!
2024 Dream Van Build Giveaway - FAQ and important details about what you win and the build process
zhlédnutí 7KPřed měsícem
2024 Dream Van Build Giveaway - FAQ and important details about what you win and the build process
Understanding inherited retinal diseases, emerging therapies, and the Mayo BBS center of excellence.
zhlédnutí 337Před 3 měsíci
Understanding inherited retinal diseases, emerging therapies, and the Mayo BBS center of excellence.
Understanding Bardet-Biedl Syndrome (BBS) and discussing emerging BBS therapies with Dr. Phil Beales
zhlédnutí 670Před 3 měsíci
Understanding Bardet-Biedl Syndrome (BBS) and discussing emerging BBS therapies with Dr. Phil Beales
You can WIN a Custom TUNDRA TRD PRO + an OVERLAND trailer + $60,000 in our nonprofit fundraiser!
zhlédnutí 128KPřed 4 měsíci
You can WIN a Custom TUNDRA TRD PRO an OVERLAND trailer $60,000 in our nonprofit fundraiser!
You can WIN this $100,000 Shelby GT500 that LUKE picked out for our current fundraiser!
zhlédnutí 581Před 4 měsíci
You can WIN this $100,000 Shelby GT500 that LUKE picked out for our current fundraiser!
You can win a $100,000 Shelby GT500 + $30,000 cash in our nonprofit giveaway fundraiser
zhlédnutí 352KPřed 4 měsíci
You can win a $100,000 Shelby GT500 $30,000 cash in our nonprofit giveaway fundraiser
60 Second Storyteller Overland Van Tour
zhlédnutí 337Před 4 měsíci
60 Second Storyteller Overland Van Tour
Updated and Whats next for A Race Against Blindness
zhlédnutí 116Před 5 měsíci
Updated and Whats next for A Race Against Blindness
A FEW LITTLE KNOWN FEATURES ABOUT THIS @storytelleroverland BEAST MODE
zhlédnutí 104Před 5 měsíci
A FEW LITTLE KNOWN FEATURES ABOUT THIS @storytelleroverland BEAST MODE
Commonly Asked Questions About Out Giveaway Fundraiser
zhlédnutí 118Před 5 měsíci
Commonly Asked Questions About Out Giveaway Fundraiser
Luke is going blind - We're giving away an epic sports car to raise funds for a cure.
zhlédnutí 186Před 5 měsíci
Luke is going blind - We're giving away an epic sports car to raise funds for a cure.
Donate to WIN a Beast MODE by Storyteller Overland - Full Adventure Van Tour - Nonprofit Fundraiser
zhlédnutí 222KPřed 6 měsíci
Donate to WIN a Beast MODE by Storyteller Overland - Full Adventure Van Tour - Nonprofit Fundraiser
Eric takes home a $250k adventure van he won in our fundraiser to help cure childhood blindness
zhlédnutí 35KPřed 6 měsíci
Eric takes home a $250k adventure van he won in our fundraiser to help cure childhood blindness
Eric learns he won a $250k van + $70k cash in a nonprofit fundraiser with A Race Against Blindness!
zhlédnutí 936Před 6 měsíci
Eric learns he won a $250k van $70k cash in a nonprofit fundraiser with A Race Against Blindness!
Win a van + cash in our non-profit fundraiser
zhlédnutí 291Před 8 měsíci
Win a van cash in our non-profit fundraiser
Tour a $250k adventure van you can WIN in our non-profit fundraiser.
zhlédnutí 24KPřed 8 měsíci
Tour a $250k adventure van you can WIN in our non-profit fundraiser.
The story of A Race Against Blindness (501c3 NonProfit)
zhlédnutí 1,2KPřed 9 měsíci
The story of A Race Against Blindness (501c3 NonProfit)
Funding sight-saving research for children
zhlédnutí 2,5KPřed 9 měsíci
Funding sight-saving research for children
9-Year-Old Going Blind | You Won't Believe What His Classmates Did to Help!
zhlédnutí 61Před 9 měsíci
9-Year-Old Going Blind | You Won't Believe What His Classmates Did to Help!
This Family's 9 Year Old Son is Going Blind | A Race to See as Much as He Can!
zhlédnutí 43Před 9 měsíci
This Family's 9 Year Old Son is Going Blind | A Race to See as Much as He Can!
9-Year-Old Boy Going Blind | Family Racing to Find a Cure!
zhlédnutí 61Před 9 měsíci
9-Year-Old Boy Going Blind | Family Racing to Find a Cure!
Who won!?!?
this is awesome!! just entered :)
Who won?
Amazing setup😊
Prayer for Luke😊
Great opportunity 😊
Sweat 😊
Nice 😊
😆 😂
Both are amazing 😊
Yummy 😊
Agree 😊
Convenient 😊
Yes😊
Everyone's dream comes true!
💪🏿
Now that's what I need, off terrain camper!❤
Your kiddo is going to have such an amazing life because of the love and support of people like you and the community around him. I'm happy to give to help any way I can. ✌️❤
How much taxes would you have to pay?
Layout. Lots of things need to smartly fit into a relatively small space. Thoughtful interior design for sure
awesome, i donated, also to the van build. Wish you and the foundation the best!
Congrats to alex and jonathan ❤
This is the one! I enter every raffle for this organization, but this package is perfect dream fulfillment
Im so blessed to be a part of this!
Entering again! Trying to start a business to get food and medical care to outlying underserved communities in my state. This would be perfect!! 🙏🙏🙏
Why does my email say there is only six hours left but you said the drawing isnt until Novemebr?
You guys are very inspiring, you will see your desired results come to fruition 🙏🏾
So happy for you two 😁
What a great cause to support 😊 can’t wait to go camping 🏕️
Come to papa 😌
So I'm just curious for the sake of lying in bed at night fantasizing about winning... what does it look like for the winner, getting the van customized? Do they give direction from home or stay in a hotel nearby to watch the work unfold?
What a beautiful family you are! I am so touched to see you becoming heroes, not only to your son Luke, but to many others that this research can help, as well as though that you inspire asking the way!! ❤❤
Entered! Just curious, which 170wb is this? Guessing a 2500 or 3500 based on the WB, but can you clarify? Thanks!
Wow .. I love this detailed, built information from the manufacturers .. thank you !! ❤❤❤❤
Hobo stew (ground venison, beef or turkey, chopped vegetables with 1/4 cup of beef broth) with corn bread Stew: Put everything in aluminum foil.. fold it completely up .. and throw it on the camp fire for 15-20 minutes Cornbread: Follow directions on the box .. mix in cast iron skillet, cover .. and put on a wire rack above the camp fire for 15 minutes My grandparents taught me, and my parents kept it going on the farm & camping .. I taught my children, and they do it with my grandchildren when they go camping Great memories ❤❤❤
👍
Congratulations
Thank you. Nice profile picture :)
@@A.Race.Against.Blindness It's my future truck, Lol 😆 🤣
So happy for them ❤
They are such a great couple and they were great winners. Such good people!
Blessed 🙌💗
That ole GMC combo sounds pretty sweet . 🙂↔️😏😉
Orgonite makes miracles become realty. Help me help the WORLD🫡
Praying for the Toyota Tundra ❤❤❤❤
Hello
Cold plunge crew! Lets goooo!!! Love to see the kids immersing in that experience with you!
I'd go canada and alaska. I'd design it like a yacht, with an L shaped curved lounge
Everywhere in the USA 🇺🇸 ❤🎣
How does this only have 100 views? You guys are incredible.
Nice ❤ Praying for mega donations !!!
Yesssss I need a truck and camper to continue my fishing trips ♥️ 🎉😊
Cool 😎