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Te Tāhū Hauora Health Quality & Safety Commission
New Zealand
Registrace 8. 05. 2012
Te Tāhū Hauora Health Quality & Safety Commission works with clinicians, providers and consumers to improve health and disability support services.
Quality and safety improvements will mean fewer people harmed, more lives saved, and financial savings within the sector.
Our vision is hauora kounga mō te katoa, quality health for all.
Find out more about us at: www.hqsc.govt.nz/about-the-commission.
Our social media moderation practices: www.hqsc.govt.nz/our-social-media-moderation-practices.
Quality and safety improvements will mean fewer people harmed, more lives saved, and financial savings within the sector.
Our vision is hauora kounga mō te katoa, quality health for all.
Find out more about us at: www.hqsc.govt.nz/about-the-commission.
Our social media moderation practices: www.hqsc.govt.nz/our-social-media-moderation-practices.
Oamaru
'Oamaru' provides glimpse into how a rural Pacific community took charge of their response to COVID-19.
A 2023 report by Te Tāhū Hauora highlighted how COVID-19 Care in the Community hubs provided care, including how Māori and Pacific hubs’ care was shaped by their cultural lens.
One such approach by the Oamaru Pacific Island Community Group (OPICG) based in the Waitaki District was an excellent example of how community ties met the demands of their community.
This 15-minute documentary highlights the work of OPICG and how they have met the needs of their Pacific community for over 40 years.
An accessible transcript is available on our website: www.hqsc.govt.nz/assets/Our-data/Publications-resources/Oamaru-transcript.docx.
A 2023 report by Te Tāhū Hauora highlighted how COVID-19 Care in the Community hubs provided care, including how Māori and Pacific hubs’ care was shaped by their cultural lens.
One such approach by the Oamaru Pacific Island Community Group (OPICG) based in the Waitaki District was an excellent example of how community ties met the demands of their community.
This 15-minute documentary highlights the work of OPICG and how they have met the needs of their Pacific community for over 40 years.
An accessible transcript is available on our website: www.hqsc.govt.nz/assets/Our-data/Publications-resources/Oamaru-transcript.docx.
zhlédnutí: 314
Video
How to take blood pressure accurately in unwell children
zhlédnutí 1,9KPřed 5 měsíci
Te Tāhū Hauora has released a video to support rollout of the paediatric early warning system. It aims to support health care staff to routinely measure blood pressure, and will be useful for doctors and nurses working in settings where acutely unwell children are assessed. It is also useful for undergraduate nursing and medical students, nurse educators and nurses and doctors who are unfamilia...
Safer use of anticoagulants: Russ’s story
zhlédnutí 235Před 5 měsíci
Russ Aiton is a consumer representative on the safer use of anticoagulants project and co-chair of Te kāhui mahi ngātahi, the Te Tāhū Hauora Health Quality & Safety Commission consumer advisory group. Russ has left ventricular heart failure with atrial fibrillation. When he was first prescribed anticoagulants, Russ and his wife did what they were told by his treating clinicians and didn’t feel ...
Safer use of anticoagulants: Marion's story
zhlédnutí 275Před 5 měsíci
Marion is a consumer representative on the Te Tāhū Hauora Health Quality & Safety Commission safer use of anticoagulants working group. She has lived experience of taking anticoagulants. In this video Marion and her husband Graham talk about their experience after Marion was prescribed anticoagulants, which was when she was admitted to hospital for replacement of two values in her heart. By sha...
Elevate the voice of consumers and whānau
zhlédnutí 665Před 8 měsíci
Elevate the voice of consumers and whānau is the theme for Aotearoa Patient Safety Day 2023. Filmed in Nelson, the video is about elevating the voice of consumers and whānau by applying the code of expectations and using co-design. It features insights from Dr Tammy Pegg, consultant cardiologist at Te Whatu Ora Nelson Marlborough, and Jodie Bennett, kaiwhaihua at Changing Minds, and members of ...
Healing, learning and improving from harm - Dr Peter Jansen
zhlédnutí 786Před 9 měsíci
Dr Peter Jansen, Tumuaki | Chief Executive of Te Tāhū Hauora Health Quality & Safety Commission talks about the new Healing, learning and improving from harm national adverse events policy 2023. You can learn more about the policy here: www.hqsc.govt.nz/our-work/system-safety/healing-learning-and-improving-from-harm-policy/
The co-design process
zhlédnutí 526Před 11 měsíci
Co-design is how we partner to design a higher quality and safer health system. Watch this 1-minute animation to learn more. Have you tried our 'Co-design in health: an introduction' course yet? It is a free resource available through Manatū Hauora | Ministry of Health’s Learn Online platform. This course takes 60 - 90 minutes to complete. Learners will be able to work through the course at th...
PMMRC webinar 2023: Karakia and closing
zhlédnutí 250Před rokem
In this video, Denis Grennell (Pou Tikanga, PMMRC) closes the webinar with a karakia.
PMMRC webinar 2023: Carosika’s legacy
zhlédnutí 175Před rokem
In this webinar presentation, Tina Allen-Mokaraka speaks on behalf of her partner Tasi and herself about the Carosika Collaborative, a group formed and named after Tina and Tasi’s daughter, Carosika. Carosika was born unexpectedly early on 9 August 2014 at almost 24 weeks’ gestation. She passed away shortly after birth. The Carosika Collaborative is a collective of health providers and consumer...
PMMRC webinar 2023: Equitable access to necessary health care - Pregnancy ultrasound
zhlédnutí 100Před rokem
In this webinar presentation, Claire MacDonald (New Zealand College of Midwives) discusses the need for equitable access to necessary pregnancy-related health care, particularly pregnancy ultrasounds. Claire discusses what is currently happening and what needs to happen in the sector to support access to these ultrasounds.
PMMRC webinar 2023: Young parent support service
zhlédnutí 279Před rokem
In this webinar presentation, Violet Clapham (Midwifery Resource Centre, Canterbury) speaks about the work being done to support young parents in the region.
PMMRC webinar 2023: Ao Mai te Rā, The Anti Racism Kaupapa
zhlédnutí 145Před rokem
In this webinar presentation, Kiri Dargaville (Principal Policy Analyst - Equity, Manatū Hauora Ministry of Health) discusses Ao Mai te Rā, an anti-racism initiative to support the way the health system understands, reacts and responds to racism in health.
PMMRC webinar 2023: Practicing culturally safe perinatal care
zhlédnutí 261Před rokem
In this webinar presentation, Anna Adcock (research fellow in the Centre for Women's Health Research at Te Herenga Waka-Victoria University of Wellington) discusses what practicing culturally safe care is like according to practitioners identified as champions by whānau of pre-term Māori infants.
PMMRC webinar 2023: Welcome and opening address
zhlédnutí 140Před rokem
Welcome and opening address for the recent Perinatal and Maternal Mortality Review Committee (PMMRC) webinar about the recommendations of the committee’s fifteenth annual report (you can read this here: www.hqsc.govt.nz/resources/resource-library/fifteenth-annual-report-of-the-perinatal-and-maternal-mortality-review-committee-reporting-mortality-and-morbidity-2020). Denis Grennell (Pou Tikanga,...
An impromptu kōrero with Nina Puhina Buxton
zhlédnutí 1,3KPřed rokem
An impromptu kōrero with Nina Puhina Buxton
What is the code of expectations and are we achieving what’s required?
zhlédnutí 251Před rokem
What is the code of expectations and are we achieving what’s required?
Practical accessibility tips for producing consumer resources
zhlédnutí 180Před rokem
Practical accessibility tips for producing consumer resources
Lynne Maher - Our Voices introduction_Auditorium_Partnership in design
zhlédnutí 136Před rokem
Lynne Maher - Our Voices introduction_Auditorium_Partnership in design
Waitaha Canterbury Hand Hygiene Programme Improvements
zhlédnutí 90Před rokem
Waitaha Canterbury Hand Hygiene Programme Improvements
‘Take a moment’ - a different approach to hand hygiene strategies
zhlédnutí 77Před rokem
‘Take a moment’ - a different approach to hand hygiene strategies
Welcome and introduction to World Hand Hygiene Day
zhlédnutí 91Před rokem
Welcome and introduction to World Hand Hygiene Day
Consumers share how their lived experience contributed to health improvements
zhlédnutí 309Před rokem
Consumers share how their lived experience contributed to health improvements
Co-designing the consumer health forum Aotearoa
zhlédnutí 249Před rokem
Co-designing the consumer health forum Aotearoa
Consumer voice: Why your community should get involved in the consumer health forum Aotearoa
zhlédnutí 272Před rokem
Consumer voice: Why your community should get involved in the consumer health forum Aotearoa
Consumer voice: What does equity mean to you and your community?
zhlédnutí 332Před rokem
Consumer voice: What does equity mean to you and your community?
Very nice to know about and watch beautiful cultural practices . This gives insight into cultural practices which has greater implications on health outcomes
I wasn't diagnosed until my 60s. My skin feels like it's on fire always. I need bi-lateral reverse shoulder replacements and my other knee replaced at 67. I had knee issues at 12. I put my thumb to my wrist all the time. I had major knee surgery at 19. I've been on disability for 13 years. Barely surviving financially. Cervical and lumbar spine are shot. The pain is unvbearable. I'm constantly nauseous. Carafate stopped working.
K
This isn't your fault Heather! You and your team tried everything to save Matt, I know that despite the efforts you all tried your best for, unfortunately you weren't able to save your son. Thoughts are with all of you. 🙏❤🤲🤘
Armenian prouding is the best
When my mother was very ill in hospice tge same thing happened. This is culture coming before the recovery of others.
My father had brain surgery then he returned to the 4 bedroom. All in the room we in various stages of recovery. When a group of people stood around an Islamd man's bed and sang to him. It wad inconsiderate.
Way too many interruptions by the reading panes.
Anyone who have surgery exam tomorrow 😊
What if you have random tissue manifestations but only a hyper spine. Your youngest son has all hyper joints. And my middle had the appearance of marfan. I don’t know if I should see help.
🦓 Thank You 🦓
This disorder affects the whole body and yes we get depressed it’s never ending too. Also Thank You to the dam vax everything escalated in flare since 3 dam years now pissed off is saying it mildly. Now compressions to deal with too besides the other issues we have grrrr
I love working in the Operating Room Theatre.
I had no difficulty with the sound, clear and informative. Thank you
Dr. Amer Suleman in DFW, TX is a cardiologist who works with a lot of EDS patients. I went to him for POTS symptoms and that led to me getting also diagnosed with EDS. Knowing this information has changed my life and validated so much of my personal experience- and also, how this wasn’t discovered before is super frustrating. There were only a million signs 🫠🫠🫠 Turns out it’s not “anxiety and depression.”
I´m from France and I love seeing the maori cultural practices like the hangi, the boil-up, the haka and the ram-raids
If the treating clinician is not obligated to follow the patient's wishes or apply treatment outlined in the plan and it is valid d evidenced best practice treatment, where is there any accountability in reasoning not to do so? Are there any frameworks for treating clinicians in reasoning not to do so? What is the next step for families/whanau to see that it is applied?
The WHO checklist - well illustrated by the team
Hello, 🐒🐒🦮🐕🐶 God the Father loves you so much that He sent Holy Sinless Jesus (His Holy Son) to earth to be born of a virgin.Then, to grow up and die on a cross for our sins. He was in the tomb for 3 days, then Father God raised Holy and Sinless Jesus Christ (Y'shua) to Life! He appeared to people and went back to Heaven. We must receive Sinless Jesus sincerely to be God's child(John 1:12).After we get saved by grace through faith in Christ, if we truly love the Lord Jesus Christ, then we will obey Jesus(John 14:15). Mark 1:15 "And saying, the time is fulfilled, and the kingdom of God is at hand: Repent ye, and believe the gospel." Jesus said in John 14:15 "If you love Me, keep My commandments. "There's a real hell. It says in Revelation 21:8 "But for the cowardly, & unbelieving, and abominable, and murderers, & immoral persons sorcerers & idolaters & all liars, their part will be in the lake that burns with fire & brimstone..." Please sincerely receive Holy Jesus and put your true faith & trust in Him today and please repent. Will you have a Real encounter with Holy Lord Jesus (Y'shua is His Hebrew Name) and stay in a Genuine relationship with Him daily please?
I was diagnosed with eds as a kid in the early 90's. I finally got pregnant after several miscarriages and the pregnancy made my eds symptoms go out of control. Im unable to work. I applied for disability and i got denied. My doctor's are not listening to me. I need help
Are you in uk? I went private to see Dr Paul Brennan in London. Diagnosed and now have a treatment plan. I pray that you get the validation and help you need.
@@Lionessliving I'm in the US
Omg i wish i could be made pain free. Im wheelchair bound and drowning in overwhelming pain. I also have Syringomyelia and loads of comorbid conditions. No help here in Oklahoma
Yes help not as available in US as other countries
I was born in Timaru 1963. Always had hyper 8:24 joint mobility. I am still having a hard time with Doctors in Australia. I live in Darwin now.
so beautiful.
If you've got EDS, google 'The Fibro Guy'. You're welcome.
I have had eds/hms for over 40yrs, and so much stuff hits us out of nowhere, that frankly the patient becomes more expert. I would love to see a doctor or consultant who suffers from chronic eds/hms,,and let them experience the daily hell it is and the ignorance and cynism so many doctors treat us with.
I have EDS, POTs and chronic vertigo.
It’s not genetic, it’s the hereditary pass on of late stage Epstein Barr Virus, the toxins the virus release cause this, it can be healed
How? Intrigued
@@Lionessliving knock down the EBV
I was party trick girl reluctantly lol
I'm 45. I've recently trained to be an RN in Canada, and have been practicing for about a year. I'd never heard of EDS before my girlfriend mentioned it last week. I'm almost certain I have it. Anyone know if chronic headache is a symptom?
For sure - the ehlers danlos subreddit is a great place to search for specific symptoms.
Yup. It's very common. ❤
Do we need the adverts?
Dr assumed they wouldn't be able to pay😮 Because I had dreadlocks.Dr assumed i was takibg drugs and plied my 5 week old baby with morphine codeine diazepam pethadine only to ween him off these drugs and my son came back with brain damage...in their reports they wrote my son had hypothermia and decided to call it sids
Embarrasing in its simplicity and sound is poor
Hurrah for realising we are so many.
Omg I think this is what I have. My mother has it too and both of my adult children. My son has dislocated his elbow twice and his shoulder once. My daughter has had digestion issues. I live with chronic pain. But the three of us can do great party tricks together. Where can we get help? We are in Wellington.
I know you posted this a while ago, but ask to see a physiatrist (they are MD's who specialize in body mechanics). But before you ask your primary care person for a referral, start by checking physiatrists online who have excellent reviews. Then call them and ask if the Dr. treats EDS patients. These dr's are most equipped to also know how to diagnose and treat instabilities and can refer you to for appropriate bracing (big help), and sports taping (that stabilizes tough areas to manage like shoulders). Look for clothing that is made specifically for people with EDS. They make undershirts and other garments that have elastic bands that hold you together which reduces pain. Find a physical therapist that does water therapy. Try to see a naturopath that has experience with immunology because EDS is a disorder involving protein metabolism so we have differences in how we absorb certain nutrients, and how effectively we make hormones, enzymes, and neurotransmitters. Being deficient makes it even harder to heal and function cellularly. My naturopath (with degrees in biochemistry and organic chemistry) made some changes that really improved my son's and my life. Also, they have found a link to autism spectrum disorder, so that is important to watch out for. Lastly, your symptoms can be much better or worse within the family due to what is called penetrance of the gene. My sister has it but is mildly affected. I am wrecked. Best to you and your family.
There doing away with toilets in home base if you get taken short go into the bushes great Britain its sticky smell Britain when thay say people can't manage to go to the loo im nearly 80 years old I've already closed down one company habels for not providing facilities home base ist providing facilities im 80 I can't hang on till I get home Peter hankin
Anyone in Christchurch have advice re getting a diagnosis/know a GP with good awareness of EDS?
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
That's terrible that they told you that. It's not true at all. My husband has EDS.
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
Hi there, EDS is more commen in women, but it can affect anyone. I don't know much about the healthcare system in Canada, but there are a few great online pages about EDS that may help you. Let me know if you'd like me to link them here for you.
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
Hi Jeremy. I live in Red Deer. I have EDS. Alberta is truly a wasteland for medical care for EDS. Other countries are moving towards treatment and care for connective tissue disorders but Canada is doing nothing. How are you coping?
Hi I’m from Edmonton Alberta Canada i really need help there’s no drs here to help with EDS and there telling me only women can get EDS and I know it’s not true or is it I’m entersex I don’t know if that makes a difference please get back to me. I have no life I can no longer work every time I try. I pop my joints I get injured I can barely move. Takes me about four hours just to get out of bed. It’s to the point where I’m extremely depressed. I’m begging you help me.
Yes men can have EDS too but there is a smaller proportion of them compared to women. I think mainly because men have more muscle to support joints than women. Don’t give up there is help out there but it takes some effort to find it unfortunately. Join the EDS community online. I’ve learnt many helpful tips from other sufferers to manage my pain.
I have heds and all three of my sons have it also. So yes men can absolutely get it.
EDS is a non sex-linked dominant trait so the risk to offspring is 50% regardless of sex. Men have the higher levels of testosterone so they tend to have milder symptoms than women (as a rule). The penetrance of the gene is what makes the difference between those affected less or more. If you carry a gene with greater penetrance, you will have more symptoms. Your dr is a doofus for telling you that. Find someone else if you can. Please look for some posts that I just did in 2 responses close to your post a little higher up in the comment section. I gave some info that you might find helpful. I'm sorry that was told to you. Dr's should not tell people things in which they do not have expertise .
What is the name you mentioned of the PT specialist?
You be picky, we can't soften this type of thing anymore for non-Maori. They want us to say their names properly.
Chur Cus Cheers, where everyone knows your name. Free taxis and a food voucher would help.
I recently tripped over and dislocated my shoulder. So much pain 😢
My oldest son had ehlers danlos syndrome he had the worst kind and was hospitalized most of his life in and out of the hospital he passed away at the age of 33 . I was told that the eds is passed down from my mothers side and
For 30 years no doctor has ever been able to give me a diagnosis. I’ve lived in severe pain for years. Barely able to walk, lost my job and have had 8 orthopedic surgeries. I was however kicked out of the Army in 1981 for EDS.
The horror of watching the wilful mutalation, deliberate obvious brain damage and systemic physical harm being inflicted on these people by those claiming to be "health providers" and "care givers" when in reality they are absolutely the opposite. Health destroying poisoners incapable of integrity, honesty or objective insight and self observation of their part in the meat processing factory of this industry, that relies on the capture and gutting of human beings for corpse rat profits of average some ten thousand dollars per victim per week. These people are treated as captured milking cows for the big pharma multinationals. 95% of their brain function disabled. Repeatedly told they are "mentally unwell" and that these majic pills will cure it, when the pills create all the symptoms they are claimed to prevent. This is cannabilism of those capable of feeling, by those who are trained to not. But to make a convincing act of compassion. But adhere to a coded standard called "professional withholding of empathy". They take wages and salaries to remove all quality of life from their victims, and shorten their lives by an average of 25 years. The sick ones, delusional, psychopathic, Narcissistic and outright dishonest with themselves and those they wish to believe they are helping are those paid. The healthy ones, expressing natural emotional responses to their trauma are their prey. Kept in depression and limbo. Unable to heal. Being slowly drained of all vitality, all spirit, all connection to community, by the predators that pretend to care. Disgusting!
There is limit to having the medical professional work on your body when they get things wrong 90 % of the time working on you thinking they no and understand the complexity of H/EDS and all other types, and bits you have from other types that you may have do fit into a neat little box the medical professional like to do,, 🙏 amituofu
We also have larger amygdalas generally and more reactive flight or fight systems.