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World Bladder Cancer Patient Coalition
Registrace 30. 09. 2020
The World Bladder Cancer Patient Coalition (WBCPC) is the global voice of people affected by bladder cancer. Established in 2019, the international umbrella organisation unites patient organisations from across the world who work to raise awareness and support bladder cancer patients.
Helen Lacy'' reflections from the World Bladder Cancer Patient Forum 2023
Helen Lacy, bladder cancer patient advocate, shared her experience at the Bladder Cancer Patient Forum 2023 in Spain. She highlighted the incredible opportunity to network with other organisations and connect with fellow bladder cancer patients.
zhlédnutí: 8
Video
Prof. Petros Grivas'' reflections from the World Bladder Cancer Patient Forum 2023
zhlédnutí 13Před 14 hodinami
Prof. Petros Grivas, Clinical Director, Genitourinary Cancers Program, University of Washington Fred Hutch Cancer Center, discussed the importance of patient advocacy at the World Bladder Cancer Patient Forum 2023.
Fatima’s experience with bladder cancer - 5 Women, 5 Experiences
zhlédnutí 14KPřed měsícem
1 in 4 bladder cancer patients are women. We help to tell their personal stories. Meet Fatima. In the fifth video of the series “5 Women, 5 Experiences,” we meet Fatima, a 40-year-old from Mumbai, India who shares her journey with bladder cancer. Fatima’s journey began in 2017 when she noticed blood in her urine, leading to a nephrologist referral and initial treatment. Later that year, after m...
Vivian’s experience with bladder cancer - 5 Women, 5 Experiences
zhlédnutí 16KPřed 2 měsíci
1 in 4 bladder cancer patients are women. We help to tell their personal stories. Meet Vivian. In the fourth video of the series “5 Women, 5 Experiences,” we meet Vivian, a 50-year-old from Johannesburg, South Africa who shares her journey with bladder cancer. Vivian’s journey began in 2018 with a cervical cancer diagnosis, leading to surgery and being declared cancer-free. Two years later, fol...
Facing Bladder Cancer: Amit's story of diagnosis and resilience
zhlédnutí 9KPřed 3 měsíci
Amit from Singapore, diagnosed with bladder cancer at 46, shares his challenging story in this video. Starting with unnoticed symptoms and an unexpected diagnosis during a routine health checkup, to intensive treatments and profound life changes, Amit’s story is a stark reminder of the realities of bladder cancer. Bladder Cancer is the 9th most commonly diagnosed cancer in the world with 614,00...
Angela's experience with bladder cancer - 5 Women, 5 Experiences
zhlédnutí 6KPřed 3 měsíci
1 in 4 bladder cancer patients are women. We help to tell their personal stories. Meet Angela. In the third video of the series “5 Women, 5 Experiences,” we meet Angela, a 42-year-old from Niverville, Canada who shares her journey with bladder cancer. Diagnosed in 2020 after her symptoms were initially mistaken for a UTI, Angela's bladder cancer journey included multiple TURBTs and BCG treatmen...
Ana Maria's experience with bladder cancer - 5 Women, 5 Experiences
zhlédnutí 25KPřed 4 měsíci
1 in 4 bladder cancer patients are women. We help to tell their personal stories. Meet Ana María. The second video in our five-part series, "5 Women, 5 Experiences" , introduces the inspiring positivity of Ana María. Aged 79 and living in Buenos Aires, Argentina, Ana María shares her bladder cancer journey. Diagnosed with bladder cancer in 2022, her cancer experience was not her first one, as s...
Claudia’s experience with bladder cancer - 5 Women, 5 Experiences
zhlédnutí 7KPřed 5 měsíci
1 in 4 bladder cancer patients are women. We help to tell their personal stories. Meet Claudia. In the first episode of our "5 Women, 5 Experiences" series, we introduce Claudia, an inspiring 46-year-old mother from Rome, Italy, who first received a diagnosis of Upper Tract Urothelial cancer, which later developed into Urothelial Carcinoma or bladder cancer. She shares her experience as a woman...
WBCPC stands with the rare disease community on Rare Disease Day!
zhlédnutí 31Před 6 měsíci
The World Bladder Cancer Patient Coalition supports the Rare Disease Day international campaign that aims at increasing awareness among the general public and decision-makers about rare diseases and their influence on the lives of families living with these conditions. Worldwide, over 614,000 people are diagnosed with bladder cancer every year. Rare forms of bladder cancer account for 3% to 5% ...
Setting WBCPC work priorities for 2024
zhlédnutí 31Před 6 měsíci
In this video, our President, Dr Lydia Makaroff, and Executive Director, Alex Filicevas wish the bladder cancer patient community a happy and healthy New Year and share some of the exciting projects and activities taking place in 2024.
Global Bladder Cancer Patient Survey results presented at SIU Congress
zhlédnutí 24Před 8 měsíci
Our President, Dr Lydia Makaroff, took the stage at the 43rd Congress of the Société Internationale d’Urologie in Istanbul, Türkiye, to present the latest research work from the World Bladder Cancer Patient Coalition. The poster presents the key findings of the WBCPC Bladder Cancer Patient & Carer Experience Survey - it showcases firsthand insights of patients and carers with their own bladder ...
Highlights from World Bladder Cancer Patient Forum 2023
zhlédnutí 13KPřed 8 měsíci
Watch a brief summary of key takeaways from this year’s World Bladder Cancer Patient Forum 2023. The 3rd World Bladder Cancer Patient Forum was a milestone event for our international community. This year, we met in Madrid, Spain, for a day full of discussions on working together to better the lives of people affected by bladder cancer. The Forum allowed for the sharing of best practices, patie...
Start-up guide for bladder cancer patient groups - carers
zhlédnutí 17Před 9 měsíci
If you are a carer supporting someone affected by bladder cancer, or if you have had such experiences in the past and wish to connect with others who have shared similar journeys, as well as facilitate connections among bladder cancer patients, now might be the opportune moment for you to initiate a bladder cancer patient group or support network in your local community. The World Bladder Cance...
World Bladder Cancer Patient Forum 2023 - Event Recording
zhlédnutí 189Před 9 měsíci
World Bladder Cancer Patient Forum 2023 - Event Recording
Start-up guide for bladder cancer patient groups - healthcare professionals
zhlédnutí 34Před 9 měsíci
Start-up guide for bladder cancer patient groups - healthcare professionals
Get involved during Bladder Cancer Awareness Month
zhlédnutí 549Před rokem
Get involved during Bladder Cancer Awareness Month
BEAT Bladder Cancer Australia joins WBCPC community
zhlédnutí 1,1KPřed rokem
BEAT Bladder Cancer Australia joins WBCPC community
मूत्राशय के कैंसर के लक्षण /Now in Hindi - Bladder Cancer Awareness Video
zhlédnutí 1,7KPřed rokem
मूत्राशय के कैंसर के लक्षण /Now in Hindi - Bladder Cancer Awareness Video
Women and Bladder Cancer - The journey of Amy
zhlédnutí 3,2KPřed rokem
Women and Bladder Cancer - The journey of Amy
Women and Bladder Cancer - The journey of Krysta
zhlédnutí 9KPřed rokem
Women and Bladder Cancer - The journey of Krysta
Highlights from World Bladder Cancer Patient Forum 2022
zhlédnutí 418Před rokem
Highlights from World Bladder Cancer Patient Forum 2022
WBCPC team share the organisation’s priorities for 2023
zhlédnutí 86Před rokem
WBCPC team share the organisation’s priorities for 2023
World Cancer Congress - Empowering genitourinary cancer patients to become their own best advocates
zhlédnutí 8KPřed rokem
World Cancer Congress - Empowering genitourinary cancer patients to become their own best advocates
Together let’s close the gap in cancer care -World Cancer Day!
zhlédnutí 88Před rokem
Together let’s close the gap in cancer care -World Cancer Day!
Stephen Head'' reflections from the World Bladder Cancer Patient Forum 2022
zhlédnutí 2,6KPřed rokem
Stephen Head'' reflections from the World Bladder Cancer Patient Forum 2022
The ‘P’ Word: The challenge of urinary problems in people living with prostate and bladder cancer
zhlédnutí 2,3KPřed rokem
The ‘P’ Word: The challenge of urinary problems in people living with prostate and bladder cancer
Leven met blaas- of nierkanker joins WBCPC community
zhlédnutí 96Před rokem
Leven met blaas- of nierkanker joins WBCPC community
Sarah Collen' reflections from the World Bladder Cancer Patient Forum 2022
zhlédnutí 328Před rokem
Sarah Collen' reflections from the World Bladder Cancer Patient Forum 2022
Inspirational.
I have blood in my urine been for months always keep uti never tell anyone
U should see a doctor
Angie, you are an inspiration. You are so strong. Love you.
thank you for sharing your story. i recently had a TURBT - and the blood in the urine - completely painless - was very disturbing. we are all in it together.
❤ My beautiful sister.
Gran homenaje a la Vida, me siento identificado. vivi una experiencia similar y en el instituto Fleming me curaron del cancer de vejiga.
Muchas gracias por compartir tu experiencia con nosotros. Nos alegra enormemente escuchar que te has recuperado y que te sientes identificado con el homenaje a la vida que quisimos reflejar. Sería muy valioso para nuestra comunidad que compartas más sobre tu viaje personal con el cáncer de vejiga, las etapas por las que pasaste y cómo el instituto Fleming te ayudó en tu curación. ¡Tu historia podría inspirar y ayudar a muchas otras personas que están enfrentando situaciones similares. Puedes compartir tu historia aquí 👉 forms.monday.com/forms/d3833173f2521b4439e4763be74904a6?r=use1
Thank you forum
Thank UOU for your informative video.🙏🙏
Hi Krista. I hope that this isn’t tmi but could you physically see red in toilet bowel or was it when you wiped that you noticed the blood? This is where I am finding confusion with what I’m finding online as out seeing blood in urine. Thanks for any info you can provide!
Red urine is the symptom
Thank you so much for sharing your experiences with all. It is very kind of you!
Interesting to hear your story. I had the removal surgery on April 11 2022, but I have never discussed it with anyone. Most of my family don't even know only because I don't want to re-live it Every time that I meet someone. It's been over a year now with good results. I'm feeling great. I had no pain at all but did come home from the hospital with what I call PTSD. I needed some medication to get me through my anxiety. I have my second 6 month checkup on August 7, 2023. Take care. Good luck in the future you look young, have a long life.
Thanks for sharing your story ❤ Iris
E
This is excellent content ❤ may I refer to it on my channel? Dan’s Cancer Story - A Tale of Enlightenment
May Allah heal youy dear sister! May He grant you patience in these trying times, you are in our prayers.
I love your attitude 😊
May Allah give you shifa InshAllah ❤❤❤!
May Allah SWT give you Shiffaa and a complete recovery my dear sister Amy. Much love and many blessings Ndeye Fatou Diouf from Maryland
May Allah Give you shifah. InshAllah your resilience and your positivity will prevail. Lots of love
You are a strong woman and I am sure you will win! Blessed abode Amy 🙏🏾✨❤️
'Promosm'
Women needed to be vigilant and know all the urologists visit are necessary and I know from experience that I get tired from going and having the Dr visits, especially since my cancer was gone for nearly 3 years, then on a routine visit he found it was back. Had more surgery and I am glad I did all he said and to continue. He said your urologist is friend for life. Stay the course and hold your chin up
My kidney doctor she’s so little bit of a blood in my urine and she said well I don’t like that I want you to go and get a check your blood hi dad sure enough they were two tumors that was last spring in 22 I have no symptoms of any kind so please if there is a blood in your urine go get it checked this wonderful lady she save my life by sending me to a specialist for blood
Hi,for me here is about ask this.hw can I prevent the sickness bcoz it is so weird.and then in my stomach downward going to the vagina,sometimes I wonder where this pain from not everyday bt it appears each and everytime.and it is from the day I give birth at home preparing to go to the hospital bt by God grace I gave birth at home.so what can it be and will it be there permently or what shall I do to be healed.and what can it be.bcoz wen the pain comes stop me every thing and take my mind off.plzz tell m the disease.it is almost two years nw.
finally I am totally cured from bladder cancer 🙏🙏 thanks you doctor Ogididan czcams.com/channels/PezZjlIXpXIjQaq488Bj0A.html
4zbm0q czcams.com/play/PLatBUqXIPJGj7c_CsXA3X6WeCYjRcT1Hz.html