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MDA
United States
Registrace 14. 02. 2007
About Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
MDA Advocacy Institute: Finishing 2024 Strong - Top Legislative Priorities
MDA Advocacy discussed top legislative priorities for the remainder of the year, including the SSI Savings Penalty Elimination Act, Pediatric Rare Disease Priority Review Voucher Program reauthorization, and the Accelerating Kids' Access to Care Act.
zhlédnutí: 17
Video
MDA Quest Podcast Featuring ‘Good Bad Things’ - Steve Way, Executive Producer
zhlédnutí 22Před 8 hodinami
#MDA #QuestPodcast #DannyKurtzman #SteveWay #ShaneStanger #GoodBadThings www.goodbadthings.com/
Nyheim Hines and Ethan LyBrand, PSA for the Muscular Dystrophy Association :60
zhlédnutí 24Před 8 hodinami
Nyheim Hines, MDA National Spokesperson and Ethan LyBrand, MDA National Ambassador, team up in PSAs for the Muscular Dystrophy Association #musculardsytrophy #ALS #neuromuscular #NyheimHines #natoinalambassador #EthanLyBrand #MDA
MDA Quest Podcast Featuring ‘Good Bad Things’ - Shane Stanger, Director
zhlédnutí 31Před 10 hodinami
#MDA #QuestPodcast #DannyKurtzman #SteveWay #ShaneStanger #GoodBadThings www.goodbadthings.com/
MDA Quest Podcast Featuring ‘Good Bad Things’ - Danny Kurtzman, Lead Actor
zhlédnutí 20Před 10 hodinami
#MDA #QuestPodcast #DannyKurtzman #SteveWay #ShaneStanger #GoodBadThings www.goodbadthings.com/
MDA and IAFF 70 Years of Partnership - Donald S Wood, PhD
zhlédnutí 33Před dnem
#MDA and #IAFF 70 Years of Partnership - Donald S. Wood, PhD, President and CEO, Muscular Dystrophy Association #FillTheBoot #MuscularDystrophy #ALS #Neuromuscular
MDA and IAFF 70 Years of Partnership - Ira Walker
zhlédnutí 35Před dnem
#MDA and #IAFF 70 Years of Partnership - Ira Walker, MDA National Ambassador #FillTheBoot #MuscularDystrophy #ALS #Neuromuscular
SMA Awareness Month - MDA National Ambassador, Ira Walker
zhlédnutí 66Před 21 dnem
#SMAawarenessMonth - #MDA National Ambassador, Ira Walker #SpinalMuscularAtrophy #SMA #Neuromuscular
National Postal Workers Day - MDA National Ambassador, Ira Walker
zhlédnutí 40Před 21 dnem
MDA celebrates the members of the National Association of Letter Carriers (#NALC) on #NationalPostalWorkersDay, July 1, 2024, in a message from #MDA National Ambassador, Ira Walker.
MDA Advocacy Institute: Clinical Trial Diversity
zhlédnutí 56Před 28 dny
Did you know that clinical trials with diverse participants provide more broadly applicable and reliable results that help determine whether critical treatments are safe, effective, and can benefit a wide variety of patients? Unfortunately, too many clinical trials lack a diverse pool of participants, and many are left out of the process. But we can change that. See how by watching the MDA Advo...
Advances in Research and Care for Myasthenia Gravis
zhlédnutí 183Před 28 dny
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Srikanth Muppidi, MD (Stanford University), presents information regarding the most recent advances in research and care for MG. This includes receiving an MG diagnosis, traditional and recently approved therapies, and therapies that are currently in development. After Dr. Muppidi’s presentation, he leads a drug development roundtab...
Managing Medications for Myasthenia Gravis
zhlédnutí 102Před 28 dny
Dr. Claire Spahn, PharmD (Stanford University), provides an insightful look at how patients can manage their medications with a Myasthenia Gravis diagnosis, including goals of medical therapy, managing side effects and exacerbations, and drugs to avoid. This presentation is part of MDA’s Myasthenia Gravis 2024 Virtual Learning Series. Thank you to our virtual learning series sponsors, Alexion, ...
Myasthenia Gravis in Children
zhlédnutí 45Před 28 dny
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Leslie Delfiner, MD (Montefiore Medical Center) presents information regarding Myasthenia Gravis diagnoses in children, touching on both Autoimmune MG and Congenital Myasthenic Syndrome. She also discusses the Neuromuscular Junction, Care Team Coordination, and resource identification and support for families. Thank you to our virtu...
Myasthenia Gravis Treatment Expectations: Setting the Bar for a Life Without Symptoms
zhlédnutí 109Před 28 dny
At the 2024 MDA Myasthenia Gravis Virtual Learning Series, Dr. Jeffrey Rosenfeld, MD, PhD, FAAN, FANA (Loma Linda University) provided a comprehensive presentation regarding the current treatment landscape of MG, how patients can change their treatment expectations, coping and perspective considerations, and other MG-related topics. Thank you to our virtual learning series sponsors, Alexion, ar...
A Major Step Forward - Celebrating Major Air Travel Reforms
zhlédnutí 38KPřed měsícem
A Major Step Forward - Celebrating Major Air Travel Reforms
Time to Re-Evaluate Becker Muscular Dystrophy
zhlédnutí 134Před měsícem
Time to Re-Evaluate Becker Muscular Dystrophy
MDA Virtual Learning FSHD Updates in Research
zhlédnutí 192Před měsícem
MDA Virtual Learning FSHD Updates in Research
MDA x Magic Wheelchair: Katherine’s Scooby Doo and the Mystery Machine Reveal
zhlédnutí 59Před měsícem
MDA x Magic Wheelchair: Katherine’s Scooby Doo and the Mystery Machine Reveal
MDA Advocacy Institute: FAA Reauthorization Passes
zhlédnutí 65Před měsícem
MDA Advocacy Institute: FAA Reauthorization Passes
Accredo's Patient Centric Approach to Rare Conditions
zhlédnutí 38Před měsícem
Accredo's Patient Centric Approach to Rare Conditions
Becker Muscular Dystrophy A Novel Approach Designed to Protect Muscle
zhlédnutí 106Před měsícem
Becker Muscular Dystrophy A Novel Approach Designed to Protect Muscle
Patient and Caregiver Perspectives on a New Treatment Option for DMD
zhlédnutí 149Před měsícem
Patient and Caregiver Perspectives on a New Treatment Option for DMD
Updates in Research and Treatment Options for Pompe Disease
zhlédnutí 130Před měsícem
Updates in Research and Treatment Options for Pompe Disease
Dutch Bros and MDA partner to End ALS: Drink One for Dane & Brooke!
zhlédnutí 28Před měsícem
Dutch Bros and MDA partner to End ALS: Drink One for Dane & Brooke!
Happy Mother’s Day from MDA with Brooke Eby
zhlédnutí 33Před měsícem
Happy Mother’s Day from MDA with Brooke Eby
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
zhlédnutí 17Před měsícem
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
End ALS With MDA - Lou Gehrig Day with MLB Brewers’ Rhys Hoskins
zhlédnutí 55Před měsícem
End ALS With MDA - Lou Gehrig Day with MLB Brewers’ Rhys Hoskins
A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy
zhlédnutí 193Před 2 měsíci
A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy
MDA Advocacy Institute: ALS Policy Updates
zhlédnutí 54Před 2 měsíci
MDA Advocacy Institute: ALS Policy Updates
MDA Virtual Learning: ALS Series Day 1
zhlédnutí 136Před 2 měsíci
MDA Virtual Learning: ALS Series Day 1
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Thank you for all your hard work.
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All of you really fought that dragon as if you summoned the spirit of Star Platinum from JoJo's Bizarre Adventure
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Keep the content coming buddy 🙏