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So no advances since this was made 12 yrs ago?

😊

Cool now everytime I forget a word I’m going to lay awake that night thinking I’m getting dementia.

Don't go near pharmacy drugs. Go natural

Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope, have faith not fear 🙏🙏🙏

Last time i saw my mom she wasnt my mom. Its like she was possessed by a demon. I looked into her eyes and saw nothing!!!!

Many of these people have some obvious weight issues.

Does that scare you? That has to be the most ridiculous question that someone could ask.

I am a logical person. I am educating my kids in what could happen to me when I get older. I never thought of what I can do to prepare. This documentary gave me HOPE and guidance. Very well done thank you. Mark

It's been more than 9 years.Can we have an update on how they are doing?

These families are the idea: they have the people, the intelligence, inspiration, drive, and time to pursue the absolute best for their loved ones. I have only a small town neurologist who sees my husband once or twice a year. He was diagnosed only 2 years ago but I suspect this has been going on for about 18 years! How do I get a PET scan? I am barely able to keep up with the his daily needs and surprises. We are in lock down in an independent living community where we haven't left except for some doctor's apts. since early last March. There is no support or learning going on here. I have just discovered some support groups on zoom and am hopeful that l will be able to get him a more detailed diagnosis, and myself some help with learning how to take care of him. I have a son who is very supportive financially but is not in our lives on any regular basis and lives thousands of miles away, and a daughter is who is an hour away over a mountain and is swallowed up by her own needs facing her own crises. Hubby is 80 with a kind of useless right arm and hand and other issues, and I am 77 with degenerative spine issues a lot of neuropathy in shoulders, arms, hands. We are such a mess. I just hope to be able to do what I need to do. These families with their advanced planning and network of support are soooo impressive. Wonderful to watch and of course heart-wrenching. Thank you for being there.

Now this dissease is now poppular knows how Sindrome of nienman pick´s disease TAU bodys in the brain and the metabolism problem destroys frontal and temporal brain... im living this. I have...

We're beginning to see a connection between amyloid tangles in Alzheimer's and diabetes. In fact many researchers call it Type III Diabetes. Is it possible that insulin resistance along with exposure to bad, cheap seed oils is causing this too? Have patients tried getting into nutritional ketosis and staying there?

I’m diagnosed. It is terrible, I feel huge guilt putting my family through this. I never know how I will act. I am trapped in my house. 2 of my 3 kids just can’t understand, they think I should just be forgetful. I want to make it to their high school grad, then I have decided to take charge. No one believed me for so long I even had a brain biopsy. I still get lousy treatment.

Who came here because of the 60 MInutes story that just aired recently from CBS?

This is by far the best documentary on FTD. I have been fighting these symptoms for a while now and it really is sad how short life can be and to have to live in this state of mind. I truly pray everyday that science will have some big break throughs to help us get help.

The trouble with long term care insurance is that they keep raising the premiums until you can no longer afford them and you're forced to drop it. Years of premiums wasted for no benefit.

Know it well! It sucks! It is a living hell.

I have Ftd, my 2 sisters have Ftd, one passed away at 56, I was told mine is slow going, is that good or bad, I currently live n a Nursing Home, in a cottage for younger onset Dementia, there are 14 other residents under the age of 60 living in the only cottage in Australia, I'm passionate that we need more cottages, as there are younger onset dementia people living in older units, which is not right

5G and we see these problems amplified. Explanation but NO cause given.

one person in film claims they helped themselves with brain games and "anti anxiety meds". Benzo drugs make most other dementias worse. Maybe each of us has to figure out what helps our brain function as best it can.

It’s tough if you have no caregivers, but you do have a young child who depends on you. So many of the questionnaires are aimed at carers or family members, but it’s possible to hide the worst (esp. the most embarrassing) symptoms from others, and with older children having left home, that’s not been so hard to do. But, in the meantime, I’m drowning...

Many doctors fluff off illnesses. Depression and anxiety is a common diagnosis to get you out of their office.

Almost 7 years since this film. What happened to Susan? Is she around. Love!

Charmian Farnon reportedly died from FTD. Charmy portrayed Liesl von Trapp in the 1965 movie "The Sound of Music."

I wonder if the DNA SNPs causing FTD can be traced to Neanderthal SNPs. I bet those w/ FTDs have a heavier load of Neanderthal DNA.

As well, this loss of memory treatment “shocking cuno press” (Google it) is a rational development which improve recovery on your concentration and memory. This is very fun to start with. I`m finding my strengths and also those areas that challenge. I`ve done more duties everyday with out worries with my memory so great..

Hi I have just had my diagnosis of Frontoltemporal Dementia this week after a two year battle. I have been tested for everything and anything. This has been mainly do to my age, I'm 49. Trying to have doctors listen to me and not just say that I'm depressed has not been helpful. I can now move on and try and enjoy my life as much as possible. As title says " it is what it is " I can't change it I and my family have to make the most of the time we have. Thank to the families for sharing your stories and letting others into your very personal lives. Julie

I am taking care of my 79 year old mother who has FTD. In the past year she has attacked me 6 times. I was wondering if this is normal or just something she does? Any help much appreciated.

VERY VERY SAD DISEASE! I KNOW SOMEONE WITH THIS! PLEASE SCIENCE, FIND A CURE!

A mishmash of random video clips with no organization. Waste of time.

Thank you for posting this! My dad was diagnosed with FTD at 65 and lived with it for 7 years. He passed away at the beginning on February 2016. I'm writing a book now about all the hilarious and heartbreaking stuff my family went through with my dad's journey through dementia. I actually launched a campaign on a site called Publishizer that lets your take pre-orders for your book so that you can either attract a publisher or raise enough money to self-publish. If you're even vaguely interested, you can read my book proposal at publishizer.com/fractured-memories/. I would love any help you'd be willing to give me in terms of spreading the word. If not, I totally understand, and thank you again for your video!

Hope to God there is a cure and God give each family a Blessing to sustain them

Depression and bi-polar are the "go-to" conditions when they can't quite figure out what is wrong with the patient..

Thank you for this documentary!

Susan Grant is such an inspiration.

good video, early diagnoses is important, but it comes on some so quickly that they are caught off guard, as are their family members

My brother in law was Dx'd with FTD at 42 and died at 44, supposedly from FTD. I am looking forward to watching this video and will be doing more research. Can anyone give me their opinion of onset to death in reference to time?

they have only said my mother has dementia...but the MRI showed hardening of the arteries in the frontal lobe of her brain..so I am assuming this is what she has....God Bless not only my mom, but all the families and victims of this horrible disease......Only God can intervene....our medical staff, insurance companies, cancer centers, are in fact corrupt...not the people that work in these fields but the owners of these fields and the overseers.... even if they had a cure ...they would never reveal it....it is a billion if not trillion dollar a year business...thousands of Jobs would be lost....God please Bless America....Please turn this country back to you....only then will we see change...God Bless us all...

thank you so much, its really helped me to understand the FTD.

thank you so much, its really helped me to understand about FTD.

As a former financial planner, I whole , hardily agree with their comments on the need for Long Term Care from an Independent Advisor. Thanks for this great video!!!

My mother have FTD and I'm learning how to be a better care giver to her by educating myself on condition.

Thank you for sharing this great coumentary. It is hard to live this way, but even harder when people do not understand.

"in order to effectively treat the disease"...not too many effective treatments for dementia.

i think i have this in my left shouder--now i know a little more of what to do about it..

Very EDUCATIONAL! REALLY ENJOYED IT.

Thank you for this informative video!

Living With Frontotemporal Disease is my favorite documentary

I'm not sure why but I've only just seen your comment now. I hope you are doing really well.