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Still Positive Podcast
Registrace 11. 02. 2021
Talking to those with and without chronic illness and/or disabilities. Because even if you feel like death - we're not there yet. So let's chat!
Part of Britt: Multiple Sclerosis
Multiple Sclerosis or MS is a disease that impacts the brain, spinal cord and optic nerves, which make up the central nervous system and controls everything we do.This can cause symptoms such as numbness, tingling, mood changes, memory problems, pain, fatigue, blindness and/or paralysis. Everyone’s experience with MS is different.
On this episode I talk with Britt - also known as *ahotMS* - a Multiple Sclerosis Advocate, writer, singer and all around amazing human.
Follow Britt:
www.tiktok.com/@ahotms
ahotms
czcams.com/channels/zFblCvuTn8ZAxyEXE1lwDA.html
ahotms.com/
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Email: stillpositivepodcast@gmail.com
Follow Dayna:
_____DaynaMarie
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MUSIC: Laces Out
Follow Laces Out:
lacesOutTheBand
open.spotify.com/artist/6t0pK...
On this episode I talk with Britt - also known as *ahotMS* - a Multiple Sclerosis Advocate, writer, singer and all around amazing human.
Follow Britt:
www.tiktok.com/@ahotms
ahotms
czcams.com/channels/zFblCvuTn8ZAxyEXE1lwDA.html
ahotms.com/
Follow Still Positive:
stillPositivePodcast
czcams.com/channels/13NJpipstz343VhDw0nmYQ.html
spoti.fi/3rMHbVe
Wanna chat on Still Positive?
Email: stillpositivepodcast@gmail.com
Follow Dayna:
_____DaynaMarie
runnnDMC/
MUSIC: Laces Out
Follow Laces Out:
lacesOutTheBand
open.spotify.com/artist/6t0pK...
zhlédnutí: 17
Video
Part of Jacqui: Spinal Muscular Atrophy
zhlédnutí 5Před rokem
Miss Jacqui is a poet, singer, songwriter and musical artist who happens to share her life with Spinal Muscular Atrophy, a rare neuromuscular disorder that breaks down nerve cells in the brain and spinal cord. Having Spinal Muscular Atrophy has been a part of Jaqui's journey for quite some time and has made her into the person that she is today. Listen in to her music with the links below! Foll...
Part of Steph: CHARGE Syndrome
zhlédnutí 70Před 2 lety
CHARGE syndrome is an acronym for a recognizable syndrome with known pattern of features. It presents itself in different ways for each individual and for Steph, it hinders her eye sight, causing her to have be blind. Although CHARGE is a part of Steph's life, she also takes part in a range of sports and competitions in cheerleading, pilates and even aerial yoga! Listen in to hear about how she...
Part of Sarah: Chronic Migraine
zhlédnutí 8Před 2 lety
A migraine a day keeps your sanity at bay. Or at least, that's what some may say. Sarah is one of the roughly 39 million people in the US and 1 billion people worldwide that live with migraine. While Sarah experiences these chronic attacks alongside her endometriosis, she works at the Global Healthy Living Foundation to bring the issues of BIPOC citizens with chronic conditions to their represe...
Part of Lexi: Low-Grade Serous Ovarian Cancer
zhlédnutí 74Před 2 lety
Lexi is living with Low-Grade Serous, a sub type of ovarian cancer. As an AYA cancer patient, Lexi is living her life as fully as she can while simultaneously staying within the constraints of her next oral chemo time. Follow Lexi: leximestas STAAR Ovarian Cancer Foundation: www.staaroc.org/ Follow Still Positive: stillPositivePodcast czcams.com/channels/13NJpipstz...
Part of Maddie : Charcot-Marie-Tooth disease
zhlédnutí 50Před 2 lety
Maddie has said that she doesn't remember a time when she did not have CMT. She was diagnosed with Charcot-Marie-Tooth disease in the fifth grade and in middle school, lost her ability to run. It wasn't until years later that Maddie would find herself utilizing mobility aids to assist her in walking with less pain. In this week's episode, Maddie shares her journey living with CMT and coming to ...
Part of Mandy: N.E.D Metastatic Cancer
zhlédnutí 16Před 2 lety
Having No Evidence of Disease is the goal for cancer patients as soon as they hear the words "you have cancer". But what happens when you have No Evidence of Disease but still have to get maintenance treatments for the rest of your life? Are you sick or are you healthy? Mandy talks to us about her experience becoming NED within six moths of being diagnosed with Metastatic Breast Cancer and how ...
Part of Chiara : Metastatic Breast Cancer
zhlédnutí 16Před 2 lety
Chiara has been given the diagnosis of Metastatic (or stage 4) Breast Cancer. After getting this diagnosis about a year ago, Chiara has been negative, positive and everything in between while processing the timeline that she was given. After all of this, Chiara still finds herself living each day and making it the best that she can. Listen in to Chiara’s life and living with Metastatic Breast C...
Part of Noli: Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)
zhlédnutí 29Před 2 lety
Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is a long-term disease thats main symptom is a fatigue that feels very different to ordinary tiredness and may take a day or two to kick in after physical, mental or emotional exertion. Listen in to Noli’s experience of living with ME/CFS and how she got her mom to be her photography assistant along the way. Follow Noli: instagram.com...
Part of Kemi: Living with Paralysis
zhlédnutí 29Před 2 lety
Kemi was an artist before her car accident that left her paralyzed, but she continued creating art after it as well and had her art take on a whole new meaning. Not letting her paralysis define who she is, Kemi continues to create art for herself that communicates to others with or without disabilities. Kemi is currently accepting commissions! Follow Kemi: kemisart kemisart.com/ ...
Part of Brandon: Type 1 Diabetes
zhlédnutí 1Před 3 lety
Brandon was diagnosed with Diabetes when he was just 3 years old. He has been living with it ever since then and in his 30 plus years of having it has been through life saving moments and surgeries to get him to where he is today. Follow Brandon: brandonmouwofficial Pre-Order Brandon's book: imaginewellc.com/im-still-kickin Follow Still Positive: stillpositivepodcas...
Begin Within: with Christina
zhlédnutí 4Před 3 lety
After being couch bound with heavy Lyme Disease symptoms, Christina wanted to get some of her thoughts and feelings out onto paper. As a licensed Psychotherapist, Life Coach and Writer, Christina began on her journaling journey and started Begin Within. Listen in to how her developing this journal has helped her in her chronic illness journey. Check out Begin Within: www.beginwithintoday.com/ F...
Hearts Need Art: with Constanza
zhlédnutí 5Před 3 lety
Being in a hospital for an in-patient stay can be lonely and isolating with nothing to look forward to like there is in pediatric care. Constanza saw this as an opportunity to create Hearts Need Art to bring music, art and writing activities to patients in and outside of hospitals to help lift their spirits and their creative minds. Check out Hearts Need Art: heartsneedart.org/ he...
Living Benefits: with Courtney
zhlédnutí 2Před 3 lety
In high school, Courtney worked in a living care facility, looking after those with physical and mental disabilities. She has taken those experiences and is committed to opening up thee conversation about Living Benefits insurance to help save those who could be in a financial bind one day because of their health. Follow Courtney: livelaughloveinsurance Get a Quote!: team.freedom...
Part of Tori: Chronic Yeast Infections
zhlédnutí 17Před 3 lety
Tori and Dayna sit and chat about how living with chronic yeast infections has motivated Tori to start Medical Herstory and bring awareness to women and trans-women's health within the healthcare industry. Listen in to how Tori flipped the script with her own experience. Follow Medical Herstory: medicalherstory medicalherstory.com/ czcams.com/channels/tZFH4YKduDxBGeXP8PaylA.html ...
Part of Alexa: Hemiplegic Intractable Migraines
zhlédnutí 31Před 3 lety
Part of Alexa: Hemiplegic Intractable Migraines
🔥🔥🔥👏👏
I am 22 and I was diagnosed with low grade serous ovarian cancer at the age of 20. I loved listening to her and her story, it has really helped me
So glad to hear that it helped you in some way! Low grade serous is so rare so I'm glad this video reached you. Lexi is great at raising awareness. Be sure to check out her socials in the show notes <3
It's been quite a while since I took a look at what CMT content was on CZcams. Knowing I have CMT since my late 20's I've never had the chance to listen to someone sharing in-depth, being so real and open what Maddie's journeys been like. Amazing vibe between Maddie and Dayna, you're both a BLESSING...I HOPE this channel continues to grow along with your social media followers..SHINE ON 🔥- Scott
Thank you so much, Scott! I'm glad you found this channel and found Maddie's story helpful. It's not every day you meet someone as open and forthcoming with their experiences.
ｐｒｏｍｏｓｍ 😞
I’m so glad I found this 💜💜💜 we need to talk about this more about chronic illness and living with it!
I'm so glad you found us too!! 👾💜